Letter from Uganda: PKU with No Limits

Marketa Rysava has sent us an update on her Uganda trip! Marketa, a woman with PKU, is volunteering with Girl Power Foundation. Cambrooke is co-sponsoring Marketa’s journey, supplying her with Glytactin Build 20/20, Glytactin BetterMilk Lite, and Glytactin Complete 15 Peanut Butter bars as well as low-protein foods including Cinnamon Hot Cereal, Instant Noodle Soup, Eggz, and MixQuick. You can read about Marketa’s trip in her other blog posts. Below are excerpts from Marketa’s letter. *** We had a registration day last Monday. [...]

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Cooking with your kid: meet Katie M, Low Protein Mom

Katie M is an inspired cook and the mother of a kid on a low-protein diet. We spotted her delicious creations on Instagram and asked her to share some of her experiences and recipes. I’m Katie, a low protein mama to an 11 year old daughter with an extremely rare metabolic disorder. My daughter Bella was born in 2006 when newborn screenings in California were widely expanded to test for an array of genetic conditions. Her screening showed an abnormality [...]

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Jackfruit in Uganda: PKU with No Limits

Marketa Rysava has arrived in Uganda! As part of her volunteer work for Girl Power Uganda, this globe-trotting PKUer visited Community Transformation Foundation Network (COTFONE), a nonprofit that works with vulnerable children in the Lwengo district of Uganda. COTFONE works with children who are orphans, or disabled, or disadvantaged. She went on to the Girl Power Uganda headquarters. Left to right: Marketa, Flavia (Girl Power Uganda) and fellow volunteer Felicia at the Girl Power Foundation headquarters Cambrooke is co-sponsoring Marketa’s journey, [...]

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